Sometimes Comfort is Best
Making the Best of What’s Left: My Dad, MDS, Emphysema, and Alzheimer’s We finally have some answers. After months of declining blood counts, fatigue that wouldn’t lift, and shortness of breath that kept getting worse, the doctors confirmed what many of us had started to suspect: my dad has myelodysplastic syndrome (MDS). On top of the emphysema he’s lived with for years and the Alzheimer’s that has steadily taken more of him, the picture is complicated. The recommendation we received was comfort care—focusing on quality of life rather than trying to treat the MDS aggressively. It wasn’t the news any of us wanted, but in a strange way it was clarifying. MDS is a group of bone-marrow disorders in which the body doesn’t make enough healthy blood cells. It’s most common in older adults; the average person diagnosed is in their 70s. Anemia is usually the main problem, and that often leads to transfusions. When someone already has significant lung disease and dementia, the calculus chan...